This guidance document provide resources and tips for commissioners, service providers and health and social care staff providing, or delivering care to people with a learning disability at the end of their lives | NHS England
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care. Developed by 27 organisations across the palliative and end of life care system, these ambitions set out what high quality palliative
and end of life care looks like. The ambitions call on leaders from every part of the health and caresystem, and the wider community, to put the framework into practice.
This ‘top tips’ guidance has been developed by NHS England in association with the Palliative Care for People with Learning Disabilities (PCPLD) Network. The development process involved consultation with Public Health England and a range of commissioners, providers and professionals working within palliative and end of life care and learning disability settings. People with lived experience have also helped us to develop the guide.
Objective: The question “Would you be surprised if this patient were to die in the next 6–12 months?” has been included in UK palliative care guidance with the aim of supporting the identification and care planning of those nearing the end of life. Little is known about how the surprise question is utilised in the care of older people within primary care. This study sought to explore the perceptions and experiences of general practitioners (GPs).
Conclusions: Greater understanding is needed as to the difficulties experienced by GPs when assessing prognosis in older people. We propose a thematic model which could support GPs by focusing assessment on the supportive and palliative care needs of older people nearing the end of life.
Struggling to keep up to date and informed on changes impacting on palliative and end of life care? Not sure where to find the latest resources and improvement examples?
Then you will be pleased to hear we have launched a tailor made national End of Life Care (EoLC) Knowledge Hub providing you with a ‘one stop shop’ of palliative and EoLC information.
This hub provides anyone involved in the commissioning or provision of palliative and end of life care with a quick and easy way to source information, including helpful tools and resources to drive delivery of the Ambitions for Palliative and End of Life Care – a national framework for local action.
This report is aimed at commissioners of end of life care services to support new ways of commissioning through using public health approaches to build compassionate communities. The key objectives of the research were to understand the awareness and knowledge of community end of life care across a number of key audiences; their perceptions of community end of life care; their experiences of end of life care and any community initiatives; and any improvements that could be made to community end of life care.
Hospice UK has published A low priority? How local health and care plans overlook the needs of dying people. This report examines the strategic priority given to people with palliative and end of life care needs by local statutory structures in England. Freedom of Information requests were sent to all Health and Wellbeing Boards and CCGs in England. The findings show a significant inconsistency in the consideration of adults and children with palliative care needs in health and care planning.
Providing high quality end of life care that is truly centred around the needs of the individual and their loved ones is an important outcome to aim for. Given the complexity of ensuring all the patient’s needs are met, wherever possible, requires all the agencies to work together.
The ‘Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020’, stresses how we must all work together to find new ways of delivering better care to make a difference. The role of commissioners in collaborative working continues to be fundamental in making progress in end of life care.
The toolkit is aimed at being a useful resource which is complimentary to the overall national strategic direction, whilst aiming to support commissioners ‘commission high quality end of life care’ and to be complimentary to their local Sustainable Transformation Plans.